It's an exciting time for the CTX community! Patients and their families can now take solace in knowing that there is a patient advocacy organization working exclusively to meet the unique needs of CTX patients. Knowing there is a place to turn when newly diagnosed, or to learn about the latest research, or advocacy for newborn screening is unprecedented. The CTXA can provide the vital connections needed to make this all possible.
Our success depends on the generosity of all stakeholders to support the day-to-day operations and future programs of the CTX Alliance. Your gift will be used in the wisest way possible.
Thank you.